A week has past since we received the news about my donor search. The first couple of days were really hard. All I could think of was what could happen and believing the worse. Things are a bit better emotionally. I have still have moments where I just can’t handle it but I get through them.
Aaron and I have done a bit of research on umbilical cord transplants and though it will be a difficult road, there are also a lot of positive elements to it. We also have looked into what happens if a transplant isn’t a possibility. I have a bunch of questions to write down to talk with my doctor about. In the U.S there are medications that can help. I am not sure if it is available here. We didn’t talk that far ahead. Aaron is already exploring what the states has to offer. So as you can see, I AM NOT GIVING UP!
On other issues, I continue to have extreme upper abdomen pain. Saturday was a very bad day. It knocks me down for a full day when I get it. Partly the morphine. The morphine helps the pain though. I had a scope put into my stomach last week Friday and my stomach looked good. Today I go for an ultrasound on my gallbladder. I hope they can figure this out because it is not fun to deal with. On top of that I have 2 bad tooth aches but the dentist doesn’t see anything wrong. It is frustrating. I also deal with very bad lower back pain still. I guess that’s the joys of a bone marrow cancer. It does make going out and doing anything very hard. I am going to remind my doctors that I would like physio. 🙂
Today I am picking up Madison early from school and taking her to Vancouver with me. She can see what I do when I go. Her and I and her friends had a wonderful time at the Mercy Me concert last week. She was pretty happy that the opening act was a band she really liked. I still have to find a way to celebrate her 13th birthday with family on her actual birthday but I will make it happen. I start chemo in a week and that means on her birthday ( June 2) I will be pretty weak.
The plan now is to start high dose chemo . This will be everyday for 6 days. I am counting on it starting next week Tuesday but will know for sure today at my appointment. Hopefully we will find out in the next couple weeks if umbilical cord transplant donors are found. I am nervous but hopeful. God has given me strength and courage to keep going and I will keep praying and relying on Him for all of my needs. Being sick has opened up a whole new window into God’s grace for me. I am thankful to be given this gift. It gives me some peace. It makes me keep going. It has changed me.
I would like to take the opportunity to thank everyone for your prayers, gifts, meals, house cleaning, hugs, encouragement. A special thank you to those participating in the Relay for Life for me. Our family will also be participating and I hope to do the survivor lap, if I am able to walk. If you would like to join our team, please join. We all have people in our lives who are affected by cancer. I think of Ryan.S who is doing well but still has a tumor living inside of him. Krissy.L who was just diagnosed with a cancerous brain tumor. Mr.Sikma who was diagnosed at the same time as me with colon cancer. Greta. H who lost her battle to breast cancer. Dave. B who lost his fight to leukemia. Uncle Roger who lost his fight to a bone marrow cancer. The list goes on and on. It will be a very meaningful night. All the info is in the link here : RELAY FOR LIFE
Mother’s day was a little extra special this year.