What’s Next?Β 

Round 3 is over . My counts are recovering and I don’t need to be isolated anymore. So that brings on the question, what’s next? I was hoping today I would have some clarity on that question but I don’t. I do have speculation though. Last week Friday I asked the transplant team for an update. They couldn’t tell me if I had a donor but I got the impression that they were in the works of finalizing my search. I was told I should hear in the next week or 2. On Monday my head doctors office called to book an appt for me. There wasn’t a reason for the appointment. My other doctor said the next step is transplant, that they can only do so much chemo. So whether or not I have a match, I’m going to transplant. They haven’t tested any of the kids which makes me think they have a donor. On May 9th I will have all the answers. For now I need to just be patient. I get an 8 day break 😊. I will try not to think about it. 

In other news, every time I go to the hospital I pass this bakery. 

Marie and I have said since February that we are going to stop in for lunch there one day. I’m always neutropenic though. Not today though. We finally went. What a nice bakery . It was swarmed with people. The food was delicious. It did not disappoint. 

Anyways, this blog might be quiet for a bit. I will be enjoying my break . πŸ˜€

Pain in the Bones

Yesterday at my appointment it showed my counts recuperating. WBC 1.8 , platelets 50 , Hgb 100 and neutrophils 0.0. So that means I am pretty well at the end of my 3rd round.  Tomorrow's appointment I am hoping that my neutrophils have gone up. It's pretty isolating being neutropenic. It also has caused me to have a low grade fever for the last 48 hours. Thankfully it didn't hit 38 and this morning it seems to be gone. I am hoping for an update on what's next. Not sure they will have a plan yet but here's hoping. 

This third round has hit me a bit harder than the last one. I'm very short of breath, the fatigue is really bad. Yesterday I had to sit down after only walking for 1 minute . Everything hurts. My lower back especially. I have pain in my pelvis and down my legs. I have had this from the start but it seems to been worse the last week or so. I also experience bad headaches that seem different from my usual ones while going through chemo and especially when my counts are low. After getting blood last week I felt a lot better. 

I am learning to be patient. One day at a time . You don't know what tomorrow will bring. God is in control and I feel His nearness with me everyday. I'm so grateful for that. Aaron has been wonderful and encouraging as have many of you. I thank you for your cards, prayers, house cleaners , meals, gifts. We are thankful for the support we have received. 


2 Corinthians 1:3-4

Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our affliction, so that we may be able to comfort those who are in any affliction, with the comfort with which we ourselves are comforted by God.

Cards from grade 1 at WoFo. ❤️

I Have Platelets!

My HLA platelets arrived from Edmonton and are now floating around my blood stream. I’m very happy that my platelets were 3 this morning because it’s higher than 2 and means my body will be producing them on there own in the next day. After my transfusion they drew blood and I am happy to say it worked and I am now at 39. This means I get tomorrow off from going to the hospital. It’s been awhile since that happened. Have a good weekend!

The Latest in my Life

Here is the latest update. I am on day 14 of this round. My counts are very low. I had platelets on Sunday, Tuesday ,Wednesday and today. Only had 2 bags of blood on Tuesday. Since Tuesday my platelets have just continued to drop. They were 10 and after the transfusion they did a post blood test to see if they went up, they didn’t. They actually went down to 8. The next morning platelets were 4 and post blood test , they stayed at 4. Today I knew they were even lower . I broke out in bruises and  petechiae everywhere. It’s the worse it’s ever been. Today my platelets were 2 and after they were still 2. I just had a blood vessel burst in my eye ( its little )  so I’m guessing I have hit 1 now. Going through this means daily hospital visits. I was looking toward to Gavin’s first track meet of the season but I guess I will have to try for the next one. Tomorrow I get more platelets and I’m hoping they are the HLA platelets that have been donated special for me from someone in Edmonton . 

I have a mask on when I leave my bedroom because Brandon is coughing . Today my neutrophils hit a big whopping 0.0 . Which always makes me scared I’m going to get a fever. Not scared but annoyed because when I have a fever, I have to go to VGH. Who wants to drive an hour when your feverish. Anyways so far so good. 

In other news, my social worker was going to request an update on my transplant situation. It makes me anxious. Waiting is something that I seem to do a lot of with this disease. We will see if they tell me anything. 

Couple of interesting facts. My hair is coming in. I prefer being bald over stubbly. It feels too weird. So I’m going to shave it because it’s going to fall out anyways. My eyebrows are falling out but growing back at the same time. My nails are growing and are strong. My eyelashes are little. At least I still have some. My psoriasis is gone. Woohoo. 

I hang out in my room a lot because of illness and the danger it bring me. So I purchased a hospital table. I can use it to eat or watch Netflix. I’m pretty happy about it. Here it is…

And just for fun because my cat is cute. He right away climbed into the thin box and layed down. You can only see his eyes. 

He is Risen! I am Grateful!

It is Sunday night and I am alone in my house. Aaron and the kids are over and Mom and Dad Grims for an Easter dinner with the whole gang. I feel sorry for myself . I ate alphagettis for dinner with ice cream for dessert. I caught up on Survivor and watched some Netflix, alone. Earlier in the day I had to drag my butt to Vancouver with Mom and Don while my family was without me at church. Platelets were low so I had to wait to get antihistamines and then another hour and a half for the platelets to run through. I was super tired. My hemoglobin is low and I am guessing by Tuesday I will be needing blood as well. I wanted a nap. I barely got to see my family today. Sheesh that sure doesn’t sound like a happy person. Wait a minute, let me try this again…

It is Sunday night and I am spending my evening in the company of a cat, a fish and a bird. Aaron and the kids are over at Mom and Dad Grims for an Easter dinner with so many of my favorite people. I am so blessed to call all those people family. I am thankful that my kids and husband could feast on a wonderful meal celebrating our Lord and Saviour Jesus Christ. I am thankful that God provides us with food to eat on a daily basis. I am thankful for all the hands that are involved in making a lot of the food. I was able to stay home safe from any germs that could cause me to have an infection. My white blood count is very low and it is too dangerous for me to go anywhere. Being around 19 kids is probably not a good idea for me. So I am grateful that I have alphagettis to eat and delicious ice cream. Earlier in the day I needed to go to the hospital to get blood work in case I needed transfusions. Mom and Don were able to take me so that Aaron could go to church with the kids. My platelets were low and so I needed a platelet transfusion. Some man or woman came in special to donate these platelets for me. Their HLA platelets match my antibodies better because my body likes to destroy all the other ones. I am incredibly grateful for this person. Thank you.

That sounded a bit better, hey? There sure are times when I am not in a good place and get frustrated that things are so different now. I complain and cry. I get irritable and don’t want to talk to anyone. I have a bad illness. Life sucks, right? Hummm…. You know I think about what Jesus had to endure. He had to bare the weight of all our sins, nailed to a cross, suffering and died . Jesus did this for me. Jesus did this for you. My illness doesn’t seem so bad anymore. I still have a lot of wonderful things going for me. I have a wonderful Husband and 4 seriously awesome kids, an extended family and church family, friends and my prayer soldiers. I have doctors and nurses who give me great care. I have blood donors who continuously save my life. I have medical and a car to get to where I need to go. Driving into Vancouver may seem like a drag but every time I go, I get to go back to my home to be with my family. Sure things aren’t easy right now but I have everything I need for today. Every day is a new gift and everyday I will be thankful for what God has given me and placed in front of me and not on what I don’t need and what really doesn’t matter. Happy Easter everyone!

Matthew 28: 1-10

1After the Sabbath, at dawn on the first day of the week, Mary Magdalene and the other Mary went to look at the tomb.

2There was a violent earthquake, for an angel of the Lord came down from heaven and, going to the tomb, rolled back the stone and sat on it. 3His appearance was like lightning, and his clothes were white as snow. 4The guards were so afraid of him that they shook and became like dead men.

5The angel said to the women, β€œDo not be afraid, for I know that you are looking for Jesus, who was crucified. 6He is not here; he has risen, just as he said. Come and see the place where he lay. 7Then go quickly and tell his disciples: β€˜He has risen from the dead and is going ahead of you into Galilee. There you will see him.’ Now I have told you.”

8So the women hurried away from the tomb, afraid yet filled with joy, and ran to tell his disciples. 9Suddenly Jesus met them. β€œGreetings,” he said. They came to him, clasped his feet and worshiped him. 10Then Jesus said to them, β€œDo not be afraid. Go and tell my brothers to go to Galilee; there they will see me.”

Umbilical Cord’s for Stem Cell Transplant!Β 

Last week after my new nephew Thomas was born, we had a conversation about Thomas’s umbilical cord. It struck a lot of thought about umbilical cord donation. Umbilical cords can be stored from your child for a bunch of money and one day it could potentially save their life. I don’t actually know anyone who has stored their child’s umbilical cord but now that I am in a position where it matters, I may actually have considered it . The thing that people aren’t aware of is that you can also donate your child’s umbilical cord to the stem cell bank. This is free. It needs to be set up before you are 6 weeks to deliver but it really doesn’t seem like a lot of hassle for what that umbilical cord could do for someone. A person from blood services comes to collect it after the baby has been born. So why didn’t I know about this when I had babies? I actually don’t remember even being asked. I think it’s just lack of awareness. It sounds to me like a lot of people just don’t know about it. 

While my transplant team is looking for a stem cell transplant donor, they are also looking through umbilical cord donors. It’s all part of the registry. Did you know that stem cells are used for many things other than bone marrow cancers? There are over 80 different diseases that can be cured through stem cell transplants. Crazy. I’m no professional but I do think awareness is important. 

Here’s another shout of to those who are not Caucasian: Become a donor!!!! If your pregnant, consider donating the umbilical cord. 

Here’s the link, it’s super easy. https://blood.ca/en/stem-cells

* I noticed that collection is only at specific hospitals. Too bad really. 

Last Chemo of Round 3, and Exciting Baby News!

Today completed the 3rd course of chemo. Now we wait for the next 2 weeks for transfusions but hopefully I won’t need as many because this dose was a little bit lighter. I felt a bit crappier than usual this cycle . The nausea seemed to hit me a bit more  the last couple days.  My mood has also been a bit gloomy. I’m sure it’s normal, just have to get through this. One day at a time. 

A very exciting birth happened yesterday. No it wasn’t April the giraffe finally having her baby. Brenda and Shaun welcomed their 5th child, 3rd son who they named a Thomas Martin. I was so happy to meet our new nephew today. He’s so precious. A wonderful gift from our Heavenly Father. ❀ 

Best Date Ever!Β 

Today is the first day of round 3. Today my chauffeur was my wonderful Aaron. Since this doesn’t happen too often , I thought making a date out of it would be nice. πŸ˜€

First part of our date was the bmt clinic at VGH, where our waiter, I mean nurse served me some cancer killing chemotherapy. While I consumed this wonderful toxic liquid , Aaron watched some gold mining show. I tried my hand at my variety puzzles. Once the chemo was done , the nurse gave me some dessert aka : a saline flush . Once that was all finished we were on our way to the next place on our date. 

Now was Aaron’s turn to be spoiled. In relationships we have to GIVE and take. So next stop , Canada blood services. I was seriously giddy. I mean come on who wouldn’t want to be on a date there. Blood saves lives! Blood saved my life! People who donate blood and blood products are caring about others , caring about whether I live or die. Aaron has never looked so handsome. Some of us are lacking in this department , but God has provided many with enough blood to share with those in need. God is love. This is part of the love he teaches us about in his word. Love is a gift we need from God. Where would we be without it? Im so incredibly grateful. πŸ™πŸΌβ€

While Aaron was finishing up, a nice nurse took me over to the platelet donor section. This was so cool for me to see. People regularly come to Vancouver to donate platelets every 2 weeks. It takes 2 hours for the whole process.  I just wanted to give the guys a huge hug and say thank you but figured on a date it was very inappropriate. 😝 So the platelets and plasma get filtered out of blood and red blood cells and plasma are given back to the donor. 

After my little education session, I met Aaron in the lounge area where he was eating bits and bites and drinking juice boxes. How’s that for lounge food. πŸ‘πŸ»

I was so stinkin happy. ❀❀❀ Thank you my Aaron for doing this. I love you 2 cups of blood more than before. 😘😘😘 

Next part of our date , Costco Richmond! I guess I wasnt tired, yet. I just wanted to have a quick peek at the clothes and go home. It took me all of 5 minutes to want to sit down and not move. We decided on hot dogs and pop for lunch. Which we had no room for in our hands. It was a pretty sight I’m sure. Our day was pretty great though. I’m very thankful for Aaron making the time to be with me today. You can see how life of a cancer patient changes. No extravagant dates, but still wonderful time together. Getting giddy over blood, never would have thought this gift would be better than gold. Being in a store for 5 minutes, I shouldn’t have even been in it due to sickness but I’m greatful that I could last that long. Next time you’re trying to think of a date. I highly recommend a date to the blood donor clinic. if you do end up there, take a picture and show people the gift of saving lives. It’s a beautiful thing. 

Round 3Β 

Thought I would do a quick post to let everyone know that I start round 3 on Thursday. It’s a lower dose than last time so hopefully less side effects. It will be for 5 days. It’s just a bridge to keep me in remission while waiting for transplant.