Delight yourself in the Lord, and he will give you the desires of your heart. ❤️
I have a secret. I have had an appointment booked with my head doctor since last week Thursday. I choose not to tell anyone because I was scared. I didn’t know how I was going to tell everyone that a cord match wasn’t found. You see the doctor told me she would call me as soon as a cord match was found. So going into a face to face appointment, I assumed the worse. Aaron decided to come with me again. I had spent much of my last week trying to figure out how I was going to tell the kids the disappointing news. I cried daily, I prayed constantly, I lost a lot of sleep. A cord blood match was not found but I am happy to tell you all that God has answered our prayers.
I AM HAVING A TRANSPLANT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
It seems so unreal. Our family is overjoyed by this news.
Let me explain. I have a 10/10 donor but there is another element of the cross matching that has made things complicated. My antibodies. My case is not a common one. They don’t ever deal with this. So basically we all have antibodies, A+. Mine are like this A++++++. This is the reason platelets get destroyed and also the reason the stem cells would also be destroyed. Aaron in his determination contacted the Mayo clinic in Phoenix and was told antibodies don’t matter, they have drugs for this. He started the process of getting us a consultation there. Last week when my sister in law Marie and I were there we discussed this with another doctor asking why this is. She was stumped. She proceeded talk to my head doctor about it and she had agreed to send my info down to the Mayo clinic. The next day I got a call for the appointment to talk to my head doctor. So fast forward to today….
I was so nervous I seriously peed every 5 minutes. Sorry too much info but seriously! When we sat down my doctor went on to tell me that she had been in contact with the bone marrow doctors in Seattle. A total of 13 doctors came together to find a solution to my rare situation. They do not consult the states very often at all. They talked about their protocol to a situation like this and together came up with a plan that is my only chance at curing me. I was FLOORED! You pretty well had to pick my jaw up off the floor. So here is the plan.
I will start chemo on Tuesday next week as planned. Because I am now getting a transplant I will get the intermediate dose for 5 or 6 days instead of the high dose. Once my counts recover about 4 weeks later, they will be taking my own stem cells out. This will be the same process my donor will do. The reason for this is because if my antibodies reject the donor even after the stuff they do, they have something to fill my bone marrow back up instead of me dying right away. It will buy me more time basically. So that will happen around the 12 th of July. The hope is that by the beginning of September I will be ready for transplant. This depends on the donor too. However I now need to go through 4 weeks of extra drug treatment. There are 3 drugs (2 are not covered under MSP, they are petitioning to get it covered) that they are going to be giving me to kill off some of those antibodies and plasmapheresis. Click this, Plasmapheresis . After all this, I get my transplant. The exact date should be determined this week but they are asking for September 6th.
On June 6th, 2003, Aaron asked me to marry him. On September 6th, we said I Do. Interesting hey. We got this news today, June 6 .
The best part of the day was sharing the news. We started off by stopping at my Mom and Don’s. They were surprised to see Aaron and I think Mom knew something was up. My Dad was down the road picking up my Grandma and so I asked him to come to Moms. Both reactions were priceless. Tears of joy after so much heartbreak. We phoned Aaron’s Mom and family as well as few others. It was so much fun giving the news.
Shocked parents… 😀
This is me telling my my brother on the phone.
This morning Madison left on her grade 7 grad trip. Even though I am surprising her tomorrow in Victoria I couldn’t wait to tell her. I tracked her down. The joy in her voice and thankfulness brought me to tears. I wish I could have hugged her but I will tomorrow. It was hard waiting for the boys. The news was just as exciting for them. This whole business of Mom being sick and finding no solution has been so hard. They were over joyed. The hugs and woohoo’s and more hugs and me in tears , again, was the best. I asked Aaron to take pics of peoples reactions. This is a day we will never forget. God has granted me another shot. How awesome is He! He answered the many prayers going up to Him everyday. Now we will continue to pray for the days ahead. They will not be easy and the transplant itself is risky but we will not dwell on the what if’s. We will rejoice in the Lord, with family and friends.
So emotional telling the kids….
We are happy!!!!!!