Day 45 already! It’s amazing how time flies. In the hospital it was so slow. Now that I’m home it seems to go quicker. Anyways, things haven’t been so great. I do not have GVHD (graft versus host disease) yet.
I have for the past 3 weeks been suffering from lumps in my neck pushing on a nerve. The nerve pain starts in the neck and goes over my head and into the side of my nose. It is so painful and barely anything touches the pain. I basically lay in bed all day with an ice pack. Which is what I’m doing as I write. Unfortunately they don’t know what’s going on there. I’m getting a ct scan done next week. If it’s muscle related you would think it would ease up . Oh well. I know if I didn’t have the headache I would be able to do a bit more.
As for nausea, I still get it but it’s not so bad anymore. I have my taste buds coming back and the steroids I’m on make me hungry. Usually it’s more like morning sickness and I often throw up but I’m getting pretty used to it.
So other than that , things are moving along nicely. Doctors seem happy.
I did manage to cheer on all 4 Kids this week. I watched senior boys soccer on Monday, grade 8 girls volleyball on Tuesday and Dylan and Brandon ran a cross country race on Wednesday. It felt great to get out and cheer them on. I saw friends I hadn’t seen since before transplant. I got lots of wonderful hugs.
I’m supposed to stay away from crowds so I have done very little. I watch church at home and I love that I can. Livestream is great. The boys are coughing right now too so they have to keep away from me. It’s really hard though. I just want to hug them all the time.
We are still getting meals 3 days a week. Thank you everyone who feeds us. It takes a lot of stress away. I am hoping soon I rebuild my strength. I long to feel normal.
I want to craft and cook and bake and eat sushi with my friends. But I can’t. Hopefully by day 100 I will be ok. And I am not complaining because I am alive right now and so thankful God has brought me this far.
I have new worries though. When you find out you have cancer, you’re scared your going to die. Chemo fixes it and transplant happens and your scared your not going to make it through the barbaric treatment of the chemo before transplant. I got through it though. Now my worry is waiting to find out if I’m cancer free. Day 100. Then I start to think well if I’m cancer free and all donor cells, what if I relapse. It happens a lot. I know I shouldn’t worry about anything and I really try not to but it’s in the back of my mind. I pray and try to leave it with the Lord. I know no matter what we will get through it.
Please continue to pray for me to have healing. We appreciate it so much and are grateful to everyone for the support.
Check out the beautiful weather . Sure brightens up my day.