I am happy to say that the GVHD is under control! My liver test came back normal . I am having problems with an infection but that’s nothing new. I have to go off antibiotics so we can confirm it which means I probably won’t be feeling fabulous but it’s a small price to pay for accuracy. I am happy with the way things are going and still take it one day at a time.
I am able to start weaning off the prednisone . It’s a very slow wean but it’s a start. The stuff makes me feel like I have adrenaline running through me non stop. I can’t wait to be done with it.
Next week I get another set of immunizations as well as IVIG and if the flu shot is available, I will be getting that as well.
In the meantime I have been enjoying watching the boys play hockey, soccer and volleyball. It’s a treat to be able to cheer them on. Molly is keeping me on my toes but I’m loving every minute of it. I am organizing while I have energy and just enjoying life where I can. Tomorrow is Mom’s 60th birthday! Happy birthday Mom! Thank you for being such a big support to me and to our family. We love you !
Enjoy your week everyone!